Saturday, April 25, 2015

Everly's hearing birthday!

Wow what a week it has been! Everly's Cochlear Implants were activated this week starting on Tuesday, April 21st. This will be considered her hearing birthday and a day we will never forget. Everly was such a trooper. I can't imagine how scary it must be to hear sound for the first time. When the implants were activated, she cried most of the time which is a normal and good reaction. It meant that the cochlear implants were working. We went back two additional times so the audiologist could continue to adjust the programming/mapping. It's more complicated than this, but essentially she turned up the implants each time. We needed to make sure Everly was comfortable, not in pain, and could tolerate the mapping. Everly had no tears the second and third day. It's amazing how she learned to tolerate her new sense so quickly. By the third day, she definitely reacted to the testing the audiologist did. It was amazing.

Although Everly is 10 months old, her ears are that of a newborn. Think about what you expect a newborn to hear. Not a lot. Newborns don't know their names; they don't know their mother's, father's or sibling's voices; they don't turn toward a sound; there's no meaning attached to any sound. Most newborns can sleep soundly in a noisy room. It's a little bit of a hard concept for me to comprehend. It seems as if Everly should know her name, should know my voice, but she has only reacted to a couple sounds thus far. Of course this will all come in time. We resume all of our therapy next week. I am looking forward to getting back to our routine, albeit a busy one.

Thank you to everyone for all of the positive thoughts throughout this period in our lives. We couldn't have done it without all the support we received. And a special shout-out to the grandparents, as they were with us every step of the way.

First reaction of her new sense...
1st activation day
 
All hooked up with her new equipment
 
It's been a long morning but she;s still happy
 
The grandmas singing to Everly
 
 
Everly's hearing birthday is a day will we never forget!
 
At home after activation playing with brother Brooks
 
Reading books is so different now!
 
2nd activation day with our audiologist, Jamie. No tears today!
 
Playing while testing my new magic ears.
 
3rd activation day. Trying the second device that goes behind the ear. She will eventually wear this one when she gets older.
 
More testing...
 
Lots of wires and equipment!
 
Finally we are finished...at least for now! With our audiologist, Jamie.
 

 
On the way home...we spent a lot of time in the car this week. 
 
My new head gear.  I think she looks like a cute little bug now!
 
Playing with Brooks and using her voice!
 
She reacted to hearing the piano today.
 
It was pretty amazing.



3 comments:

  1. The last picture at the piano is adorable. Life WITH music is the best!!

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  2. All the pictures give my goosebumps! From the grandmas singing to her... to her new fancy gear.... to playing music with her big brother - - All such amazing stuff!! I am so excited for her and you all. xoxo Jenny

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  3. Evvie is AMAZING! Loved the pictures and loved hearing all about Evvie's progress in just one week. She looks just like Brooks in the last picture. Love that she is reacting to the piano. We love you!

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